Case studies from some of the volunteers that deliver the expert patient programme.
Health Service Journal Awards 2015
In 2015, we were nominated for the Health Service Journal (HSJ) Compassionate Patient Care award for our work within Cornwall. Our team reached the finals, and we were invited to attend a very glitzy event in London.
Out of 1,600 nominees, we got into the final 10 which was a massive achievement for such a small team in Cornwall. The dedication and hard work put in by all the team is absolutely fantastic and we are proud to say we are the rainbow in people's clouds.
Elaine, expert patient programme manager
Elaine attended an expert patient programme course as a participant on the very first course in 2003. From there she was so taken aback by the programme, and it ticked so may boxes for her, that she decided to train to become a volunteer tutor in 2004. She was offered a coordinator's role with South Hams Primary Care Trust and then went to work as a trainer for Arthritis Care for 5 years to gain further experience in delivering self-management courses.
In 2013, Cornwall were recruiting for a new manager, and she was delighted to get the role, which she had worked her way up to over the last 10 years.
"I have the most amazing and inspirational team who believe in our course content and the impact it can have on people living with long-term health conditions and their carers."
Lizzie
Lizzie attended one of our Newquay courses in 2014, after a work injury left her in permanent pain and having to undergo surgery. She was very worried about training to become a tutor as she has dyslexia, but we assured her this should not be a barrier and that we would support her in her new role as volunteer tutor. She has never looked back and is a very dedicated and important part of the team.
Denise
Denise attended an expert patient programme course at the Merlin MS Centre in 2013 and was so inspired that she asked to be trained up so she could deliver the course to other people living with long-term ill health.
In 2014, Denise qualified as a volunteer tutor. She shows empathy, gentleness and is a very compassionate lady who enjoys delivering the course. Denise also has done her level 2 counselling and has been a befriender for Face2Face in the past, supporting families who have children with disabilities.
Karen
Karen attended an expert patient programme course in 2017, due to cerebral palsy having an increasing impact on her life. She found the course so helpful and empowering at a low point in her life that she decided to train to become a volunteer tutor.
Karen made some good friends on her course as a participant in 2017, who she is still in touch with to this day. Having benefitted so much from the course, Karen qualified as a volunteer tutor in 2019. She is currently studying an NLP course.
Alan
Alan attended an expert patient programme course in 2018 in his capacity as carer for his wife, immediately saw the value in the program and volunteered to train to become a tutor. He qualified as a volunteer tutor in 2019 and since the pandemic began has assisted in adapting the program for online presentation.
Kath
Kath attended an expert patient programme course in 2009 following a diagnosis of fibromyalgia at the age of 27. Attending the course changed her life, having spent the previous 3 years staying at home focusing on every symptom and change related to her long-term condition, to a house purchase and her first pregnancy within 3 months of completing the course. She qualified as a volunteer tutor in 2019 with Alan and Karen. She was delighted to be offered the temporary position of expert patient programme course coordinator in January 2022.